Support center
Helping the Community
Join us in making an impact on the lives of those affected by multiple system atrophy (MSA). Your support can take many forms, from contributing to patient-centric research and spreading awareness, to providing emotional support to patients and care partners.
Why Volunteer with Us?
Our organization is a primary resource for patients and their families on multiple system atrophy, and our community’s contributions help us continue this imperative work.
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By volunteering your time, you’ll be:
- Providing support for our community members
- Raising awareness of this rare neurodegenerative disease
- Helping to shape the future of the organization, and much more
Join the community and help us further our impact in supporting and advocating for our patients and researching better treatments. Scroll down to see current volunteer opportunities or fill out the general interest volunteer form.
See Open Volunteer Opportunities
There are no volunteer opportunities at this time. Check back soon!
Share your msa story
Your experiences can serve as a beacon of hope for those at different stages of their journey with MSA. By sharing your story, you’ll help others feel supported and connected, providing them with the encouragement they need to face their challenges with strength and resilience.
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We’re calling on YOU to help us spread awareness and foster connection by sharing your story. You can participate by either recording a video or submitting a written response accompanied by a photo. Your experiences and insights may be featured in our future marketing efforts, inspiring and educating others along the way.
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- How has your life been affected by multiple system atrophy? (Are you sharing as someone with the disease, a care partner, or a family member?)
- What have been the biggest challenges you have faced, and how have you managed them?
- What specific activities or practices do you engage in to maintain your well-being to keep yourself happy, healthy, and hopeful while facing the challenges of MSA?
- What message or piece of advice would you like to share with others affected by multiple system atrophy?
- If you’ve done a fundraiser or raised money for Mission MSA, what did you find most rewarding? most encouraging?
- As a patient/care partner, how important is Mission MSA to you in your life?
- What are you grateful for around the holidays?
- What’s one thing you’d tell someone newly diagnosed about Mission MSA?
- As a patient/care partner, what do you value about Mission MSA?
- What would you say to people who fundraise for or donate to Mission MSA?
Strategic Planning SURVEY
Mission MSA is seeking input from the MSA community to guide our strategic planning process. We invite you to participate in a short survey to share insights and experiences. Your responses will help us shape future support, advocacy, and research initiatives to better serve those affected by MSA. The survey is anonymous, takes 15-20 minutes, and closes on December 9th.
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Your voice is essential in driving our mission forward—thank you for your valuable input!
Advocate for the MSA Community
Mission MSA is committed to advocating for and advancing key legislative issues that affect the MSA community. By utilizing our unique position as the voice of MSA patients, care partners, and researchers, we will inform, influence, and positively impact legislation that advances our mission and vision.
Explore the Action Center to connect with your representatives and urge them to endorse legislation that supports our community.
Patient Advocate Award​
This award is given out by Mission MSA annually and recognizes an MSA patient in our community who is dedicated to spreading awareness of the disease and its impact.
MSA Awareness Month
March is Multiple System Atrophy Awareness Month! Discover how you can contribute to our mission of spreading awareness and find ways to get involved throughout the month.
