Multiple system atrophy (MSA) is a rare disease, but it should never be an invisible one. Our vision is a world where living with MSA means living fully and fearlessly—but to reach that future, broad awareness is a critical first step. When you share information beyond our immediate circle, you aren’t just spreading a message; you are actively building a world where MSA care is robust, research is relentless, and the hope for a cure is real. By engaging your community, you help ensure that every person impacted by MSA is seen, supported, and powered by a movement dedicated to their future.
How will you shine a light on MSA?
BRING MSA AWARENESS TO YOUR NEIGHBORHOOD
From now through the end of MSA Awareness Month, our new Shine a Light Bundles are available to make it easy to show your support wherever you are.
Give a gift of $20, $30, or $45 to support our mission, and receive a thank-you that helps spark awareness and conversation about multiple system atrophy.
How to Participate:
- Use the donation link below to make your contribution (online donations only).
- Before checking out, be sure to check the box next to “I would like to receive the MSA Awareness Month merchandise corresponding to my donation (VALID UNTIL MARCH 31)” so we know where to send your thank-you gift!
WAYS TO GET INVOLVED
Whether you’re joining our Path to a Cure: Virtual 5K or advocating on Capitol Hill, there are countless ways to make an impact this month. Visit our Upcoming Events page to learn more. Not able to take part in the 5K? You can still support the community by hosting your own third-party fundraiser.
MERCH WITH MEANING
This MSA Awareness Month, show your support with merchandise that does more than make a statement. Every purchase helps advance awareness and advocacy for the MSA community.
Amplify the Message
We have developed a suite of digital tools designed to spark curiosity and educate those outside of the MSA community. We invite you to be the bridge that brings this information to new audiences.
PROFILE PICTURE & GENERAL MSA AWARENESS MONTH POST OPTIONS
DID YOU KNOW? MSA FACT POST OPTIONS
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1. Multiple System Atrophy (MSA) is a rare, progressive neurodegenerative disease that affects multiple systems of the body, including movement and autonomic functions.
2. Multiple System Atrophy (MSA) affects approximately 5 out of every 100,000 people.
3. Multiple System Atrophy (MSA) currently has no cure as treatment focuses on symptom management and quality of life.
4. Multiple System Atrophy (MSA) falls into a family of diseases called synucleinopathies.
5. Multiple System Atrophy (MSA) has two main types: MSA-P, which primarily affects movement and parkinsonia symptoms and MSA-C, which primarily affects balance and coordination.
6. Multiple System Atrophy (MSA) can cause bladder problems. Bladder control is often an early symptom of MSA, with up to 96% of individuals experiencing urinary symptoms.
7. Multiple System Atrophy (MSA) can affect thinking and emotions. As many as 75% of MSA patients may grapple with various cognitive issues, including difficulties with memory, attention, problem-solving, and emotional control.
8. Multiple System Atrophy (MSA) was formerly called Shy-Drager syndrome.
9. Multiple System Atrophy (MSA) typically begins between ages 40s and 60s, and it has not been found in patients under 30.
10. Multiple System Atrophy (MSA) is currently believed to have little to no genetic evidence or proven environmental factors that cause it.
