learning center
Education
Whether you’re a patient, care partner, or simply looking to expand your awareness, our educational resources are designed to offer knowledge and understanding, helping you navigate the complexities of living with multiple system atrophy.
Upcoming Events
Building a Care Team
Tuesday, September 16 at 12:00pm EST
Please join us for our September webinar, where we’ll explore the crucial role of a multidisciplinary care team in managing and treating Multiple System Atrophy (MSA).
We’ll be joined by a panel of experts who will lead us through compelling case studies, highlighting their individual approaches to treating MSA symptoms and emphasizing the power of collaborative care.
Don’t miss this opportunity to gain valuable insights from leading specialists and learn how a coordinated care team can significantly improve the quality of life for those with MSA.
Speakers:
- Jose Ricardo Lopez Castellanos, M.D., Neurologist, Medical University of South Carolina
- Amy Cooper, FNP, Nurse Practitioner, Vanderbilt University Medical Center
- Stacey McCauley, MS CCC-SLP, Speech Language Pathologist, Brigham and Women’s Hospital
Path to a Cure: Dallas 5K
Sunday, October 19 at 9:00am CST
Join us in Dallas, Texas this September for our Path to a Cure: Mission MSA 5K! On Sunday, October 19th, we are hosting an in-person fundraiser to bring our community together for a half day of spreading awareness and creating connections while raising contributions for those affected by multiple system atrophy.
Mission MSA Centers of Excellence: Upcoming Events
Fall Prevention and Gait Strategies: Managing Ambulation Risks in Patients with Multiple System Atrophy—Ataxia, Postural Reflex Impairments, and Freezing of Gait
Saturday, September 20 at 9:30AM – 12:00PM TST
Participants can register by phone or the Google Form link provided in social network groups — coming soon. No registration fee.
More than Parkinsonism Symposium
Saturday, September 27 at 9:30AM – 4:00PM CST
This free full-day event is dedicated to individuals and families affected by atypical parkinsonisms, including Dementia with Lewy Bodies, Lewy Body Dementia (including Parkinson’s Disease Dementia), Progressive Supranuclear Palsy, Multiple System Atrophy, and Corticobasal Syndrome.
Experts from Mission MSA’s Center of Excellence, along with colleagues in Psychiatry, Gastroenterology, Neuropalliative Care, Nutrition, and other specialties, will provide education and resources to empower attendees. A resource fair will also be available, featuring representatives from foundations, community services, and industry partners.
Highlights include:
Atypical Parkinsonism 101 presented by Dr. Jori Fleisher, CoC Director for CurePSP
MSA Track Presentation by Dr. Katie Kompoliti, Director of the Mission MSA Center of Excellence
For questions or additional information, please contact the event team. Advance registration is required to support event preparations.
1a Jornada Anual d’AMS (1st Annual MSA Meeting)
Friday, October 3 at 10:30AM – 2:00PM CST
The first annual MSA meeting at our center builds on the success of the previous PSP meetings held in May 2024 and May 2025. This full-day event in Barcelona (exact location TBD) is designed for people living with MSA, their families, and caregivers, with a focus on education, research updates, and community engagement.
The program will open with remarks from hospital and government representatives, followed by:
Session 1: Registries, biomarkers, and clinical trials
Session 2: Therapeutic education programs and allied health professional perspectives
Finale: Open debate between speakers and the audience
MSA experts and guest speakers include Dr. Marti, Dr. Batlle, Dr. Perez-Soriano, Dr. de Mena, Dr. Compta, and Ms. Ana Camara, Emma Ludeña, and Susana Villote. The day will conclude with institutional remarks and a catered reception. A video welcome message from Ms. Jessie Iregui is planned.
The event aims to share the latest scientific insights, highlight non-pharmacological care strategies, and create a space for dialogue between experts and the MSA community. Registration required via email.
Journée annuelle d’information sur les syndromes parkinsoniens atypiques
Saturday, October 18 at 9:00AM-3:00PM ET
The first annual MSA meeting at our center builds on the success of the previous PSP meetings held in May 2024 and May 2025. This full-day event in Barcelona (exact location TBD) is designed for people living with MSA, their families, and caregivers, with a focus on education, research updates, and community engagement.
The program will open with remarks from hospital and government representatives, followed by:
Session 1: Registries, biomarkers, and clinical trials
Session 2: Therapeutic education programs and allied health professional perspectives
Finale: Open debate between speakers and the audience
MSA experts and guest speakers include Dr. Marti, Dr. Batlle, Dr. Perez-Soriano, Dr. de Mena, Dr. Compta, and Ms. Ana Camara, Emma Ludeña, and Susana Villote. The day will conclude with institutional remarks and a catered reception. A video welcome message from Ms. Jessie Iregui is planned.
The event aims to share the latest scientific insights, highlight non-pharmacological care strategies, and create a space for dialogue between experts and the MSA community. Registration required via email — coming soon.
Genetic Diagnosis of Multiple System Atrophy and Parkinsonism
Sunday, September 28 at 9:30AM – 12:00PM TST
Participants can register by phone or the Google Form link provided in social network groups — coming soon. No registration fee.
There are no upcoming events hosted by Mission MSA Centers of Excellence at this time. Check back soon!
Our YouTube Channel
Explore the Mission MSA YouTube channel—a rich resource hub with webinars, conference recordings, support videos, and educational content. Delve into valuable insights, expert discussions, and practical guidance on multiple system atrophy. Stay informed, connected, and empowered in your journey with our diverse and informative video collection.
Read the latest from our Blog
Honoring Yang Gao’s Legacy of Hope
Don’t Miss Your Window: Tips and Considerations for Medicare and Marketplace Open Enrollment
Honoring the Fifth Anniversary of Gettin’ the Word Out! Fundraiser
Finding Your Identity after an MSA Diagnosis
The Not So Little Things