Support center
Finding Support
Living with multiple system atrophy (MSA) requires finding the right support to navigate the challenging journey ahead. Mission MSA stands ready with a comprehensive array of services, resources, and educational materials tailored for MSA patients, care partners, families, and community members alike.
Call our Patient Support Line: 866-737-5999
We’re here to provide guidance, information, and community resources to address any questions or concerns. Our patient support line is staffed from 9 am to 5 pm Eastern (USA), Monday through Friday. You may call and leave a voice message; we will return your call as soon as possible.
Mission MSA Patient Support Scheduler
Our Mission MSA Patient Support Scheduler is designed to make it easy for you to arrange a virtual meeting or phone call with our Patient Support Services Manager. When you schedule your appointment, prompt questions will be asked to ensure the Patient Support Services Manager understands your needs before the meeting.
Find a Support Group
Please note: Combined Diseases Support Group Filter – this group is for those affected by Atypical Parkinsons such as CBD, MSA, PSP, LBD
Single Disease Support Group Filter – this group is for those affected by MSA only.
(#) Groups near you:
-
Hybrid
4301 W Markham St, Slot 500
Little Rock, AR
72205
Facilitator Name: Suzanne Dhall, DrPH, MSPH, CHES, TTS
Email: sjdhall@uams.edu
-
In Person, Open to All
Surrey, BC
Facilitator Name: Robert Brett
Email: curepspbc@gmail.com
-
Combined Diseases Support Group, Online, Patients and Care Partners
CA
Facilitator Name: Darlene Gerow
Email: darlene.gerow@gmail.com
-
Online, Single Disease Support Group
CA
Facilitator Name: Robin Riddle
Email: robin.riddle@brainsupportnetwork.org
-
Care Partners only, Combined Diseases Support Group, Online
CA
Facilitator Name: Sharon Connor
Email: sharoncconnor@gmail.com
-
Online
CA
Facilitator Name: Melanie Turner
Email: artseemelanie@gmail.com
-
Care partner, patients, family members, and friends, Combined Diseases Support Group, Online
FL
Facilitator Name: Advent Health Neuroscience Institute’s Brain Health Department
Email: nsi.brainhealth@adventhealth.com
-
Care partner, patients, family members, and friends, Combined Diseases Support Group, Online
FL
Facilitator Name: Paul Freeman
Email: freemanph@aol.com
-
Online, Online Support
IL
Facilitator Name: Sarah Chen, Clinical Social Worker at Rush University Medical Center and Emily Zivin, Clinical Social Worker at Northwestern University Medical Center
Email: sarah_m_chen@rush.edu / emily.zivin@northwestern.edu
-
Support Contact
IN
Facilitator Name: Terry Shepherd
Email: tellmenolies2004@yahoo.com
-
Care partner, patients, family members, and friends, Hybrid
5101 Grand Ave
Des Moines, IA
50312
Facilitator Name: Diane Graham
Email: dianeegraham@gmail.com
-
Support Contact
MD
Facilitator Name: Shirley Snyder
Email: shirleysnyder.msa.maryland@gmail.com
-
Care partner, patients, family members, and friends, Online, Single Disease Support Group
MI
Facilitator Name: Mary Meagher
Email: mmeagher@mei.net
-
Online Support
PA
Email: contact@msanj.org
Website: http://www.msanj.org
-
Online, Online Support, Open to All
NJ
Email: contact@msanj.org
Website: http://www.msanj.org
-
Online, Online Support, Open to All
NY
Email: contact@msanj.org
Website: http://www.msanj.org
-
Care Partners only, Online, Single Disease Support Group
NJ
Facilitator Name: Tom Tait
Email: tom.tait@comcast.net
-
Care Partners only, Combined Diseases Support Group, Online
NY
Facilitator Name: Jane Jensen
Email: jensen@att.net
-
Online, Single Disease Support Group
NC
Facilitator Name: Maggie Ivancic
Email: Mivancic@neurology.unc.edu
-
Combined Diseases Support Group, In Person, Open to All
18697 Bagley Road
Middleburg Heights, OH
44130
Facilitator Name: Dave Potter
Email: davepotter7@gmail.com
-
Support Contact
OH
Facilitator Name: Susan Cervone
Email: FrankunSusan@aol.com
-
Care partner, patients, family members, and friends, Combined Diseases Support Group, Online
OR
Facilitator Name: Pat Robertson
Email: bookmole@comcast.net
-
Combined Diseases Support Group, Online, Online Support, Patients and Care Partners
Calgary, AB (Canada)
Calgary, AB (Canada),
Facilitator Name: Parkinson Association of Alberta
Email: clientservices@parkinsonassociation.ca
-
Care partner, patients, family members, and friends, Care Partners only, Combined Diseases Support Group, Single Disease Support Group
-
Care partner, patients, family members, and friends, Combined Diseases Support Group, Online, Open to All
TX
Facilitator Name: Ileen McFarland
Email: Ileen@themcfarlandbros.com
-
Care partner, patients, family members, and friends, Combined Diseases Support Group, Online, Open to All
TX
Facilitator Name: Judi Nudelman
Email: jnudelman51@gmail.com
-
Combined Diseases Support Group, Online
WA
Facilitator Name: Katie Freeman
Email: kfreeman@apdaparkinson.org
-
Online, Open to All, Single Disease Support Group, Support Contact
WY
Facilitator Name: Cathy Chapman
Email: cec@wyoming.com
Interested in starting a support group?
Contact us at info@missionmsa.org
Professional Support Services
Centers of Excellence
The MSA Centers of Excellence (COE) program aims to provide access to the best possible and easily accessible multi-disciplinary clinical care and support services for individuals affected by multiple system atrophy (MSA) and their families through a network of local and/or regional clinical centers.
Movement Disorder Specialists
Visit the International Parkinson and Movement Disorder Society’s directory to find local providers for your care team.
MSA Connect
Discover MSA Connect, an online hub uniting those impacted by multiple system atrophy (MSA). Join now to engage with a compassionate community, share personal experiences, and stay updated on the latest MSA research. Connect, learn, and find support all in one easy-to-use platform.
Resource Library
Explore Mission MSA’s extensive collection of digital and downloadable resources including videos, infographics, brochures, and more in the MSA Resource Library. Use these resources to gain a deeper understanding of how MSA impacts your life.
External Programs & Tools
Visit the U.S. Social Security Administration website to learn more about multiple system atrophy as a compassionate allowance for social security benefits.
The NORD Respite Program provides financial assistance to enable a care partner a break from caregiving.
The MSA Trust Carer’s Guide addresses some of the worries or problems care partners face while caring for someone with MSA.
