Support center
Community Stories
Testimonials
MSA patients
“Looking for clarity, I searched the internet and…found [Mission MSA]. I learned how to cope with this incurable, progressive disease through [Mission MSA] conferences. I also learned how we all cope differently with our symptoms. Shared patient stories gave me courage and hope. It allows us to give back to other patients through our own stories. This is not a forgiving disease, and we have all lost so much already. We do not want to be pitied. What we get from [Mission MSA] is empathy, prayer and hope which we all give to each other. Laughter is there sometimes as well, which can be an important part of our therapy. MSA assaults the body in many unthinkable ways. I urge you to help us find a treatment and a cure.”
“What do you do when you are diagnosed with a rare, terminal, neurodegenerative disorder with no cure? Struck down in my early 50s with children still at home, and a career I loved but could no longer function at the same level? All the internet searches were so disheartening and most doctors have no experience with it which delays diagnosis and symptom management by years. I found [Mission MSA] and there were other people like me all over the world! This international group advocates for research, fundraising and provides support for patients and caregivers. This organization has given me hope.”
“I was diagnosed with MSA back in 2014. Although it’s a very difficult experience, I have been supported by my wife, my family, friends, care partners and [Mission MSA] which has been right with me seeking new treatments and therapies all along. [Mission MSA] has funded many studies and is working hard to eradicate MSA. Please help them however you can.”
“I donate and host fundraisers for [Mission MSA] in honor of my father Drew D’Angelo’s memory. The lives of everyone in my family were directly affected by my dad’s battle with MSA, so I know first hand how hard it is. My hope is all funds raised will be donated to research for a cure, and therapies/medicines/support for those impacted by MSA. There are people out there like me, who will do whatever they can to help. I know my dad would be proud of my efforts. We won’t ever give up!”
“For patients and caregivers battling a disease like MSA, organizations like [Mission MSA] make all the difference. Access to a community of other individuals facing the same diagnosis and the unknowns that come along with it, rely on each other to make it through. The resources available are invaluable in the navigation of the diagnosis and the disease’s progression.”
“For patients and care [partners] battling a disease like MSA, organizations like [Mission MSA] make all the difference. Access to a community of other individuals facing the same diagnosis and the unknowns that come along with it, rely on each other to make it through. The resources available are invaluable in the navigation of the diagnosis and the disease’s progression.”
Share Your Story
Share your MSA journey with our community. Your experiences could provide comfort to fellow patients or care partners facing similar challenges. By sharing your story, you have the opportunity to offer support and understanding to those in our community navigating the complexities of MSA.
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Driven to Help
“I just want to make it to Christmas,” Austin Crawford says, as he fights a battle he can’t win with never-ending courage, drive, and of course flair.
Watch a recording of the premiere film screening of Driven to Help, a 55-minute documentary featuring the story of Milford resident Austin Crawford and his ongoing battle with Multiple System Atrophy. Join Austin in his 1970 Dodge Dart as he drives home the message that no matter how much is taken away, there’s still more to give, whether that’s at a local car show, tattoo parlor, or to his thousands of followers on TikTok.
