Finding Support

Support center

Living with multiple system atrophy (MSA) requires finding the right support to navigate the challenging journey ahead. Mission MSA stands ready with a comprehensive array of services, resources, and educational materials tailored for MSA patients, care partners, families, and community members alike.

Call our Patient Support Line: 866-737-5999

We’re here to provide guidance, information, and community resources to address any questions or concerns. Our patient support line is staffed from 9 am to 5 pm Eastern (USA), Monday through Friday. You may call and leave a voice message; we will return your call as soon as possible.

Mission MSA Patient Support Scheduler

Our Mission MSA Patient Support Scheduler is designed to make it easy for you to arrange a virtual meeting or phone call with our Patient Support Services Manager. This service aims to assist patients, family members, and caregivers in accessing guidance on social services, care planning, and community resources. When you schedule your appointment, you will be prompted with questions to ensure that the Patient Support Services Manager fully understands your needs before the meeting.

Find a Support Group

Please note: Combined Diseases Support Group Filter – this group is for those affected by Atypical Parkinsons such as CBD, MSA, PSP, LBD

Single Disease Support Group Filter – this group is for those affected by MSA only.

Interested in starting a support group?
Contact us at info@missionmsa.org

Professional Support Services

Centers of Excellence

The MSA Centers of Excellence (COE) program aims to provide access to the best possible and easily accessible multi-disciplinary clinical care and support services for individuals affected by multiple system atrophy (MSA) and their families through a network of local and/or regional clinical centers.

Movement Disorder Specialists

Visit the International Parkinson and Movement Disorder Society’s directory to find local providers for your care team.

MSA Connect

Discover MSA Connect, an online hub uniting those impacted by multiple system atrophy (MSA). Join now to engage with a compassionate community, share personal experiences, and stay updated on the latest MSA research. Connect, learn, and find support all in one easy-to-use platform.

Resource Library

Explore Mission MSA’s extensive collection of digital and downloadable resources including videos, infographics, brochures, and more in the MSA Resource Library. Use these resources to gain a deeper understanding of how MSA impacts your life.

External Programs & Tools

Social Security: Compassionate Allowance Program

Visit the U.S. Social Security Administration website to learn more about multiple system atrophy as a compassionate allowance for social security benefits.

NORD: Rare Caregiver Respite Program

The NORD Respite Program provides financial assistance to enable a care partner a break from caregiving.

MSA Trust: Carer’s Guide

The MSA Trust Carer’s Guide addresses some of the worries or problems care partners face while caring for someone with MSA.

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Finding Support

Mission MSA Patient Support Scheduler

Find a Support Group

(#) Support Groups near you:

USA - Arkansas - Hybrid

Suzanne Dhall, DrPH, MSPH, CHES, TTS

4301 W Markham St, Slot 500 - Little Rock, 72205

University of Arkansas for Medical Sciences Department of Neurology

602-635-0739

Canada - British Columbia - In Person

Robert Brett

Surrey,

Elim Village, Oasis Building, Meeting Room, 2nd Floor

604-930-8150

USA - California - Online

Melanie Turner

Virtual

818-404-4098

USA - California - Online

Darlene Gerow

619-806-9649

USA - California - Online

Robin Riddle

650-814-0848

USA - California - Online

Sharon Connor

619-306-7160

USA - Florida - Online

Advent Health Neuroscience Institute’s Brain Health Department

407-303-7158

USA - Florida - Online

Paul Freeman

305-970-0805

USA - Illinois - Online

Sarah Chen, Clinical Social Worker at Rush University Medical Center and Emily Zivin, Clinical Social Worker at Northwestern University Medical Center

USA - Indiana - Support Contact

Terry Shepherd

574-306-8290

USA - Maine - Online

Janet Edmunson

Portland,

Virtual

(508) 308-4195

USA - Maryland - Support Contact

Shirley Snyder

904-207-5501

USA - Michigan - Online

Mary Meagher

269-267-3117

USA - Pennsylvania - Online

MSA NJ

USA - New Jersey - Online

MSA NJ

USA - New York - Online

MSA NJ

USA - New Jersey - Online

Tom Tait

856-725-2450

USA - New York - Online

Jane Jensen

561-598-9839

USA - North Carolina - Online

Maggie Ivancic

919-843-2777

USA - Ohio - In Person

Dave Potter