Written by Patsy McDaniel
Back in 2020, I noticed some imbalance while doing everyday things. I thought it was an inner ear disturbance, but after many tests and an MRI, they determined that there was nothing wrong with my ears. Fast forward to a few months later and my family practice doctor urged me to see a neurologist ASAP. I did, and was told I had Parkinsonism and that someday my ailment would make itself known.
Back in September of 2024, my neurologist listened to all my symptoms and said it sounded like MSA. This was confirmed at the Mayo Clinic in December 2024. Now, I am so off balance. I can still walk with some help (I have a walker). I have urinary problems—my bladder doesn’t empty all the way, which causes UTIs—so I now use disposable catheters each time I go to the bathroom. This has helped tremendously.
I take clonazepam for my REM sleep disorder and take 40mg of Prozac to help with depression. I can cry at the drop of a hat. I see a counselor about every three weeks, which also helps.
I cannot believe I have this devastating disease. I was always very active and very independent. No more. Thank God for my husband, who takes good care of me. I am 66 years old. I really don’t want to leave my family and friends. Oh well.
Can you relate to any part of this journey? We’d love to hear your experience in the comments of this blog post on our online community platform, MSA Connect.